Definition
Obsessive Compulsive Disorder (OCD) is a disorder of the brain and behavior. OCD causes severe anxiety in those affected. OCD involves both obsessions and compulsions that take a lot of time and get in the way of important activities the person values.
Here is one way to think about what having OCD is like:
Here is one way to think about what having OCD is like:
Imagine that your mind got stuck
on a certain thought or image...
Then this thought or image got replayed in your mind
over and
over again
no matter what you did…
You don’t want these thoughts — it feels like an avalanche…
Along with the thoughts come intense feelings of anxiety…
Anxiety is your brain’s warning system. When you feel anxious, it feels like you are in danger. Anxiety is an emotion that tells you to respond, react, protect yourself, DO SOMETHING!
On the one hand, you might recognize that the fear doesn’t make sense, doesn’t seem reasonable, yet it still feels very real, intense, and true…
Why would your brain lie?
Why would you have these feelings if they weren’t true? Feelings don’t lie… Do they?
Unfortunately, if you have OCD, they do lie. If you have OCD, the warning system in your brain is not working correctly. Your brain is telling you that you are in danger when you are not.
When scientists compare pictures of the brains of groups of people with OCD, they can see that some areas of the brain are different than the brains of people who don’t have OCD.
Those tortured with OCD are desperately trying to get away from paralyzing, unending anxiety…
How Is OCD Diagnosed?
Only trained therapists can diagnose OCD.Therapists will look for three things:
- The person has obsessions,
- He or she does compulsive behaviors, and
- The obsessions and compulsions take a lot of time and get in the way of important activities the person values, such as working, going to school, or spending time with friends.
Obsessions and Compulsions
Obsessions:
- Thoughts, images, or impulses that occur over and over again and feel out of the person's control.
- The person does not want to have these ideas.
- He or she finds them disturbing and unwanted, and usually know that they don't make sense.
- They come with uncomfortable feelings, such as fear, disgust, doubt, or a feeling that things have to be done in a way that is "just right."
- They take a lot of time and get in the way of important activities the person values.
What Obsessions Are Not:
- It is normal to have occasional thoughts about getting sick or about the safety of loved ones.
Click here for a list of some Common Obsessions in OCD.
Compulsions:
- Repetitive behaviors or thoughts that a person engages in to neutralize, counteract, or make their obsessions go away.
- People with OCD realize this is only a temporary solution, but without a better way to cope, they rely on the compulsion as a temporary escape.
- Compulsions can also include avoiding situations that trigger obsessions.
- Compulsions are time consuming and get in the way of important activities the person values.
What Compulsions Are Not:
- Not all repetitive behaviors or "rituals" are compulsions. For example, bedtime routines, religious practices, and learning a new skill involve repeating an activity over and over again, but are a welcome part of daily life.
- Behaviors depend on the context: Arranging and ordering DVDs for eight hours a day isn't a compulsion if the person works in a video store.
Common Obsessions in OCD1
Contamination
| Unwanted Sexual Thoughts
|
Common Compulsions in OCD1
Washing and Cleaning
| Mental Compulsions
|
How Many People Have OCD?
OCD affects men, women and children of all races and backgrounds equally.
Adults
Our best estimates are that about 1 in 100 adults – or between 2 to 3 million adults in the United States – currently have OCD.1,2
This is roughly the same number of people living in the city of Houston, Texas.
Children
There are also at least 1 in 200 – or 500,000 – kids and teens that have OCD. This is about the same number of kids who have diabetes.
That means four or five kids with OCD are likely to be enrolled in any average size elementary school. In a medium to large high school, there could be 20 students struggling with the challenges caused by OCD.3
1 National Institute of Mental Health
2 Ruscio AM, Stein DJ, Chiu WT, Kessler RC. “The epidemiology of obsessive-compulsive disorder in the National Comorbidity Survey Replication.” Molecular Psychiatry. 2008 Aug 26.
3 March, J. & Benton, C. (2007). Talking Back to OCD. (pp.10-11). The Guilford Press.
OCD can start at any time from preschool to adulthood.
Although OCD does occur at earlier ages, there are generally two age ranges when OCD first appears:
At What Age Does OCD Begin?
OCD can start at any time from preschool to adulthood.
Although OCD does occur at earlier ages, there are generally two age ranges when OCD first appears:
- Between ages 8 and 12
- Between the late teens and early adulthood
What Causes OCD?
Unfortunately we still do not know the exact cause or causes of OCD. However, research suggests that differences in the brain and genes of those affected may play a role.
Is OCD a Brain Disorder?
Research suggests that OCD involves problems in communication between the front part of the brain and deeper structures. These brain structures use a chemical messenger called serotonin. Pictures of the brain at work also show that in some people, the brain circuits involved in OCD become more normal with either serotonin medicines or cognitive behavior therapy (CBT).
Is OCD Inherited?
Research shows that OCD does run in families and that genes likely play a role in the development of the disorder. Genes appear to be only partly responsible for causing the disorder though. No one really knows what other factors might be involved, perhaps an illness or even ordinary life stresses that may induce the activity of genes associated with the symptoms of OCD.
Some experts think that OCD that begins in childhood may be different from the OCD that begins in adults. For example, a recent review of twin studies1 has shown that genes play a larger role when OCD starts in childhood (45-65%) compared to when it starts in adulthood (27-47%).
What About PANDAS?
PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections)
is a proposed kind of OCD that occurs in childhood following the body’s reaction to infection.
is a proposed kind of OCD that occurs in childhood following the body’s reaction to infection.
For more information on PANDAS, including diagnosis and treatment, download our PANDAS Fact Sheet.
Future Research
Research is the key to finding the cause of OCD. Click here to read more about our research efforts and click here to make a donation to help support these programs.
Treatment of OCD
On average, it takes 14-17 years from the time OCD begins for people to get the right treatment.
Obstacles to Treatment
- Hiding symptoms. Some people choose to hide their symptoms, often in fear of embarrassment or stigma. This causes many people with OCD to not seek the help of a mental health professional until many years after the onset of symptoms.
- Less public awareness of OCD. Until recently, many people did not know there was even a name for their illness and with no name, they assumed there was no treatment.
- Lack of proper training in health professionals. People with OCD often get the wrong diagnosis from health professionals and need to see several doctors and spend several years in the incorrect treatment before getting the right diagnosis.
- Difficulty finding local therapists who can effectively treat OCD.
- Not being able to afford proper treatment.
What Are the First-Line Treatments for OCD and OC Related Disorders?
The best treatment for most people with OCD should include one or more of the following:
If the Above Treatments Don't Work, What Are My Options?
- Learn about Family Support and Education
- Find an Intensive Treatment Program
- Brain Surgery
- Gamma Knife
- Deep Brain Stimulation (DBS)
- Cutting Edge Research on New Medication Options
What About PANDAS?
PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections)
is a proposed kind of OCD that occurs in childhood following the body’s reaction to infection.
PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections)
is a proposed kind of OCD that occurs in childhood following the body’s reaction to infection.
PANDAS should be managed with early antibiotic treatment for strep infections. Continued symptoms can be treated with standard OCD treatments (cognitive behavior therapy and/or SSRI medicine). Closely watching a child's reaction to SSRIs is important as they can cause severe behavioral problems, including suicidal thoughts.
For more information on PANDAS, including diagnosis and treatment, download our PANDAS Fact Sheet.